I believe strongly that “data about patients should be patients’ data.” That is why I support the OpenNotes movement and the push to provide patients with access to data from their cardiac implantable electronic devices. Last week, I had the opportunity to spend the day among an eclectic group of pioneers who are taking the principle of patient empowerment through data to its next logical step – patients generating their own data in order to understand their own state of health, and expand the understanding of health and illness in general.
The occasion was a symposium on cardiovascular health, sponsored by the Quantified Self. Quantified Self (QS) is described on its website as a “company” but it is also a movement. A slightly dated but useful description of the movement is available here. Its members are people who are using new tools in new ways to learn more about themselves. Most of these tools are electronic, often wearable, sensors that can easily and continuously track parameters such as heart rate, blood pressure, temperature, activity, etc., but some go way beyond that, to track things like the composition of the gut microbiome. Other participants were creating new technologies to make tracking and data sharing and analysis easier.
Continue reading Quantified Self
Back in June, I wrote that “I support the public reporting of validated survey data from real patients” and I am now proud to report that our Medical Group is actually doing it.
Last week we went live with patient satisfaction scores and patient comments on our “find-a-doc” website. Here’s how it works. We contract with a nationally recognized company to send surveys to patients who have seen one of our physicians for an outpatient visit. If we have the patient’s email address, we have the survey sent electronically; if not, it is mailed to a random sample. The survey asks patients about a wide variety of issues associated with the visit, and includes 10 questions specifically about the interaction with the physician. Patients are also asked to add a comment.
We then post the average score that each of our physicians has received, along with a breakdown of the score by individual question, as well as the comments. More details are available here, but a few are worth mentioning.
Continue reading Live, from NY…
I was traveling recently and, as I typically do, I bought a copy of Fast Company magazine to read on the plane. I don’t subscribe, but I find that it often has interesting articles on the intersection of technology and business. In the July/August issue, there was an article about GE and its CEO Jeff Immelt that I think has important parallels with the current transformation of healthcare delivery. Continue reading The Next Wave